Meet Jesse, age 22

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Nick Jonas Meets the Team in Napa

Border, Utah

Update from Cheryl!

Well we finally made it to #Nevada 🎉

Utah was pretty brutal to us but happiness returns with fun water stop entertainment by Jesse, good showers and rest!

So proud of Abby she is so strong and never complains! She is my inspiration❤️

Cross-country riders raise awareness about living with Type 1 diabetes

[Post originally published by The Times Independent in Moab, Utah,  available HERE.]

by Molly Marcello

Matt Swain (left), Tom Dillon and Jesse Lavine relax during a “Bike Beyond” potluck in Moab. Photo by Molly Marcello 

In an effort to show that having Type 1 diabetes doesn’t mean opting out of adventure, 19 individuals with the chronic autoimmune condition are biking across America from Brooklyn, New York to San Francisco, California. Their ride, called “Bike Beyond Type 1,” landed them in Moab July 24, where they met with community members and other diabetics to share stories about the condition and their great journey.

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Moab, Utah

Here’s a video captured by Neil Greathouse of the brushfire that started right after lightning struck a field across from the house the team was staying in!

Loveland Pass, CO

Update from Ryan!

After riding up our first Colorado mountain pass, the first thing we decided to do was hike to the *actual* top of the mountain with our bikes. The opportunity was too good to “pass” up ✌️😅  Jesse and Elliot, you guys are insane!

Last Chance, CO

Update from Cheryl!

Photo from Stockton, Kansas

Update from Elliot!

😄 🚴🏻Another 274 km in 2 days, in 105 degree weather!! SO hot 🔥🔥!! Just a couple thousand more to go! #cycling #bikebeyond #t1dlookslikeme#picoftheday #goodglucos #t1d #t1dstrong@beyondtype1daily @theellenshow – have us on your show!

updates from Helen’s day in the van!

Lunch van duties today in the van with lovely Perri. It’s definitely not a rest day as your have to stick with the team providing water, food, low snacks and any other help needed. It was great to watch the team be so great, pushing so hard in crazy hot weathers, on a long ride with a lot of hills!


Weirdly I had the most hypos in one day today. Maybe after yesterday’s big ride? I like to look for patterns/trends in my sugar levels but mainly I like to accept it does whatever and I just aim to deal with it at it comes!
#bikebeyond #livebeyond #diabetesnz #biking #type1diabetic

 

Update from The Listening Room Cafe

Bike Beyond Team members celebrate songwriters night with EMI Records Nashville recording artist Eric Paslay!

Bike Beyond Picnic!

Thanks to Neil Greathouse for capturing this fun video of the team picnic!

 

Louisville, Kentucky

Update from Silvi!

Update from Melissa!

#TeamTopless rides again

I’ve Got Soul Video

Thanks to Neil Greathouse and Go Pro for this video of the riders!

 

Day 2 prep!

 

05/29 Pre-Ride Questionnaire

Tell us about the first time you rode a bike. 
I don’t remember, I probably fell over. I definitely had training wheels for a while. I had this sweet yellow trick bike that was passed down from my brother, I put some pegs on it and tried to do some sweet jumps and stuff.

Tell us about a crazy moment or embarrassing experiencing with Type 1.
Both of these happened soon after diagnosis and I was pretty young, maybe 12 yrs old tops. I was visiting NYC, and wanted to see the Toys R Us store with the giant ferris wheel inside. But my BG was low, and I spent the whole time in the basement by the bathrooms with my mom giving me glucagon b/c my BG wouldn’t come up after many treatments.
This other time I was in Maryland having Passover seder with some extended family, but we were for some reason at a HUGE, GIANT seder, I was 12, and tried a glass of Manishevitz wine. I don’t think I got drunk, no, but I did start throwing up in the bathroom and my mom gave me a glucagon shot in my but on the car ride home cause I threw up all my dinner. That was the first time throwing up with diabetes and realizing that the insulin I gave myself for the food I threw up would still act, and have no food to stop its path towards bringing my blood sugar plummeting down.

What would your spirit animal be?
Probably a majestic mountain lion. Or a baby dinosaur.

What’s your go-to low snack?
It was cliff blocks for a time, but I just bought a big bag of dried mango slices to carry around with me. And then assorted, unsalted nuts to sustain me afterwards.

Tell us something on your bucket list.
Play guitar with Nick Jonas, and ride across the country on a bicycle.

If your friends could pick three adjectives to describe you, what would they be?
Witty. empathetic. driven.

What’s the last thing you watched on TV and why?
House and Scrubs. I’m alternating. House is 44-47 min per episode, and I watch it with my friend Will. We’re keeping a journal of all the interesting medical stuff we learn while watching it. Well we haven’t started the journal yet, but we are tonight. And Scrubs because it’s funny and I’ve heard it’s the most realistic depiction of what a hospital setting is actually like. I’m interested in being a part of a medical team at some point in my life, maybe soon, so I like to learn by watching.

Tell us something about yourself that most people wouldn’t know.
I have type 1 diabetes. No, jk. I can roll my stomach back and forth both ways.

What’s a super power you wish you had?
The ability to morph into any animal at any time. Or the ability to stop time so I could read a thousand books and not age at all, and the come back to reality.

Tell us something you’re good at!
Freestyle dancing at parties.

If you had a theme song for yourself, what would it be?
The theme song from SSX Tricky. That song is sweet.

If you had a nick name/alter ego for yourself during the ride, what would it be?
The midnight phoenix. That’s a name I came up with for myself senior year of high school when I stayed up late to do homework. or Gil Faizon from Too Much Tuna.